Cochrane involve consumers in their work, encouraging the inclusion of consumers among the experts called on to assess draft protocols and reviews. Consumer feedback is a key strategy in making Cochrane reviews more relevant, accessible and able to improve health care for the people who need it.
Cochrane believes that consumers contributing to its work should be properly equipped to undertake the range of tasks that they undertake. There are a range of online resources to be found on this site https://consumers.cochrane.org/learning
Involving consumers in Cochrane reviews: learning from the ACTIVE project: This webinar tells people more about the ACTIVE project. ACTIVE stands for Authors and Consumers Together Impacting on eVidencE. The project is bringing together evidence, information and resources about the active involvement of consumers in systematic reviews to create learning resources to help review authors involve consumers within systematic reviews https://training.cochrane.org/resource/involving-consumers-cochrane-reviews-learning-active-project.
Guidance for consumer reviewers – online guidance and instructions for consumer reviewers
Here is a brief guide for authors on involving consumers (patients and public) in a Cochrane review.
As part of Cochrane’s Strategy to 2020, these materials are presently being reviewed and soon we aim to offer new online and other resources, and a pathway through them, that equip consumers to undertake the full range of tasks even more effectively. Watch this space, Facebook and Twitter for more information about how to get involved in the development of these new resources too.
More information can be found on the Cochrane Consumer Network website here https://consumers.cochrane.org/
The Eve Appeal
Jo's Cervical Cancer Trust
Gain (Gynaecological Awareness Information Network)
James Lind Alliance
The International Brain Tumour Alliance (IBTA)
Womb Cancer Alliance
Sleep Help is a site devoted to increasing sleep health awareness and wellness, working on a resource all about how patients in treatment and remission can deal with the sleep-disrupting side effects of chemotherapy, steroids, and other treatments. You can find it here: https://www.sleephelp.org/cancer-sleep