James Lind Alliance Priority Setting Partnership

What was the aim of the project? The aim of the project was to identify and promote the clinical research questions of most importance to children and adults with brain or spinal cord tumours.

Who led the project? Robin Grant, Co-ordinating Editor for our Group, led the project supported by a Steering Group.

When did it take place? It took place 2013 to 2014

How was it funded? The project was funded by several brain and spinal cord tumour charities and multidisciplinary organisations: BrainstrustBrain Tumour ResearchChildren with Cancer UKThe Brain Tumour CharityEdinburgh & Lothians Health FoundationCochrane  and the International Brain Tumour Alliance.

What did we do? We undertook a James Lind Alliance Priority Setting Partnership (JLA-PSP) in collaboration with brain and spinal cord tumour patients, carers, major brain and spinal cord tumour charities and multidisciplinary organisations to identify the top 10 UK clinical research priorities in this area. More information on this can be found here.

What topics were found to be priority?  Ten unanswered questions were identified as part of the JLA-PSP and eight of these have been or are currently being published as Cochrane priority review titles as part of a Cochrane NIHR Programme Grant (SRP Project:16/114/18: Complex Cochrane Systematic reviews in prioritised brain tumour areas in collaboration with NCRI & NICE).

The list of reviews completed or ongoing based on priority topics from this exercise can be found here, including links to the reviews on the Cochrane Library.